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What is a TED flare?
A TED flare is when TED symptoms appear again after a period of stability. In a study of 415 patients, 15.7% of patients experienced recurrent TED. Most of these cases occurred within the first 1O years after the first episode of TED.
TED, Thyroid Eye Disease.
Caring for Someone with Thyroid Eye Disease?
There are a lot of ways you can help someone with TED
You are not alone. The tips below reflect the collected wisdom of TED caregivers like yourself. Here is how you can help:
Learn as much as you can about TED and how to care for it
Become an advocate and go to appointments, take notes, and ask questions
Encourage independence. Caregiving does not mean doing everything for them
Be open to technologies and
strategies that allow your
loved one to remain
independent
Know your limits. Be
realistic about how much of
your time and yourself you
can give
Remember, you need to take care of yourself too
As a caregiver for someone with TED, you may be so focused on taking care of them that you forget to take care of yourself. Before you know it, the stress of caregiving can make you sick and unable to provide care. Fortunately, there are some simple tips caregivers can use to take care of themselves.
Avoid burnout.
Get the support you need or you’ll quickly burn out, which can make it harder for you to care for both yourself and your loved one.
Don’t do it alone.
Even if you’re the primary family caregiver, you can’t do everything on your own. Get help from friends, siblings, and other family members, as well as from healthcare providers.
Set aside time for yourself.
Even if it’s just an hour or two, take some time for yourself. Remember, taking care of yourself is not a luxury, it is an absolute necessity for caregivers.
Stay healthy.
Eat right and get plenty of exercise and sleep.
Join a caregiver support group.
Sharing your feelings and experiences with others who are in the same situation can help you manage stress, locate helpful resources, and reduce feelings of frustration and isolation.