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What is a TED flare?

A TED flare is when TED symptoms appear again after a period of stability. In a study of 415 patients, 15.7% of patients experienced recurrent TED. Most of these cases occurred within the first 1O years after the first episode of TED.

TED, Thyroid Eye Disease.

Thyroid Eye Disease and Vision Advocacy Organizations

Taking on TED, together

If you have TED, you are not alone. Here are some organizations and communities dedicated to helping those with TED. They help to connect individuals and assist in making them feel supported.

TED support resources

Thyroid Foundation of CanadaThyroid Foundation of Canada

Thyroid Foundation of Canada

The Thyroid Foundation of Canada is a non-profit registered volunteer organization whose priorities include:

  • Awareness—To awaken public interest in, and awareness of, thyroid disease.
  • Support—To offer emotional and informational support to thyroid patients and their families, including through our national helpline staffed by trained volunteers with lived experience.
  • Access—To advocate for equitable access to timely diagnosis and treatments that improve the lives of people living with thyroid disorders.
  • Research—To assist in fundraising for thyroid disease research.
Canadian Organization for Rare Disorders (CORD)Canadian Organization for Rare Disorders (CORD)

Canadian Organization for Rare Disorders (CORD)

Canada’s national network for organizations representing those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.
Canadian Organization for Rare Disorders (CORD)Canadian Organization for Rare Disorders (CORD)

Regroupement québécois des maladies orphelines (RQMO)

Supports individuals in Quebec with all types of rare diseases by providing information, resources, and advocacy.

TED, Thyroid Eye Disease.